Kenapa Saya Kerap Disuntik?

“Ketika berusia empat tahun, anak lelaki saya Caleb Lim terpaksa menjalani pembedahan paru-paru kerana doktor mengesyaki ada jangkitan di bahagian berkenaan.

“Hampir 10 hari dia tidak sedarkan diri di unit rawatan rapi, namun penyakit sebenarnya tetap gagal dikesan.

“Jika kami mengetahui mengenai penyakit ini lebih awal, sudah pasti Caleb tidak perlu menjalani semua prosedur menyakitkan itu kerana apa yang dia perlukan hanyalah antibodi,” kata ibu pesakit PID, Karen Koh, 30-an.

Menurut Karen, sebaik saja anaknya disahkan mempunyai masalah pada sistem imun badan iaitu penyakit kekurangan ketahanan primer (PID), dia sekeluarga tidak pernah putus harapan termasuk melakukan rujukan sendiri bagi mendapatkan maklumat lebih jelas mengenai penyakit itu.

Disebabkan masalah itu juga, Karen sekeluarga berulang-alik ke Hospital Kuala Lumpur (HKL) tiga minggu sekali untuk membolehkan Caleb mendapat suntikan IVIG.

Suntikan untuk antibodi badan itu perlu dilakukan kerana Caleb tidak dapat mengambil sebarang vaksin pencegahan seperti kanak-kanak lain.

Begitupun, Karen mengakui dia dan suami bersyukur kerana anak lelakinya itu tidak mempunyai masalah untuk mengambil makanan dan dapat membesar seperti kanak-kanak berusia 10 tahun yang lain.

“Kadang-kadang Caleb ada bertanya mengapa dia perlu mendapat suntikan setiap tiga minggu sekali sedangkan rakan-rakannya yang lain dan adiknya (Chelsea, 7) tidak perlu berbuat demikian.

“Pertanyaan itu sukar untuk kami jawab, tetapi untuk tidak mengecewakan hatinya, kami menjelaskan dia seorang kanak-kanak istimewa dan bukannya tidak normal,” katanya yang mengakui, disebabkan penyakit berkenaan, Caleb mendapat perhatian lebih daripada keluarganya.

Kata ibu kepada dua anak ini, jika kanak-kanak sebaya anaknya demam, biasanya ia mengambil masa sekitar dua hingga tiga hari saja, tetapi bagi Caleb, keadaannya memakan masa sehingga seminggu untuk pulih sepenuhnya.

Keadaan kesihatan anak sulungnya itu turut menyebabkan keluarganya mengubah semua jadual termasuk memperuntukkan masa bercuti berdasarkan kesesuaian rawatan Caleb.

“Caleb menjadi lebih bertenaga selepas mendapat suntikan IVIG dan badannya mula lemah di akhir tempoh rawatan.

“Jadi, kami pastikan pergi bercuti selepas dia mendapat suntikan kerana jika tidak, badannya lemah dan keletihan.

“Keadaan badannya seperti kereta tiada bateri dan selepas dicaj (diberi suntikan IVIG), ia bertenaga dan sihat semula,” katanya.

Menurut Karen, Caleb mendapat PID daripada dirinya dan anak perempuan biasanya hanya menjadi pembawa.

Dia juga akui membawa masalah itu daripada ibunya dan diturunkan kepada anak lelaki yang mempunyai peluang 50 peratus untuk memiliki PID.

“Setiap kali melihat Caleb, saya dihantui perasaan bersalah kerana tanpa disedari, saya sedikit sebanyak menjadi penyebabnya.

“Sehingga kini, tiada ubat dapat merawat penyakit ini melainkan melakukan pembedahan sum sum.

“Saya berharap, masyarakat dan kerajaan lebih pekakepada penyakit ini kerana ia boleh berlaku pada sesiapa juga tanpa kita sedari,” katanya.

Sementara itu, Karen turut kesal kerana syarikat insurans anaknya tidak mahu menanggung kos perubatan dan memberi alasan ia bukan satu penyakit, tetapi masalah kesihatan berkaitan genetik.

Karen dan suaminya, Bruce Lim membeli insurans perlindungan dan perubatan untuk Caleb sejak hari pertama dia dilahirkan.

Namun, selepas anaknya disahkan mempunyai PID, syarikat insurans berkenaan seperti melepaskan tangan dan enggan menanggung kos perubatan.

“Saya harap kerajaan dapat berbuat sesuatu kerana tiada ibu bapa di dunia ini yang minta anak mereka mempunyai masalah kesihatan seperti ini. Jika kerajaan tidak membantu, pada siapa lagi kami hendak mengadu,” katanya.

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